Below are website links that I have found helpful:
Please join our LGMD2i Facebook group
www.facebook.com/groups/LGMD2i/
It is essential that we have everyone with an FKRP mutation register so we can identify patients when clinical trials become available
http://www.fkrp-registry.org
Clinical Trial for those with LGMD2i
https://clinicaltrials.gov/ct2/show/NCT02841267?term=lgmd2i&rank=1
Clinical Trial Readiness for the Dystroglycanopathies
http://www.clinicaltrials.gov/ct2/show/NCT00313677?term=lgmd2i&rank=1
We have a foundation raising money for a cure, please visit the CURE LGMD2i Foundation
http://curelgmd2i.com
There is a very informative FB group that addresses breathing with muscular dystrophy, I encourage you to join:
https://www.facebook.com/groups/BreathewithMDSupportGroup/
German LGMD2i Facebook group
Jan Bahlmann founded this group as a way to exchange experiences with other affected people in Germany. To join you need an active Facebook account and are requested to contact Mr. Bahlmann directly via private message.
https://facebook.com/jan.bahlmann (available after login)
Limb Girdle Muscular Dystrophy 2i Research Fund
http://www.lgmd2ifund.org/
Relevant Scientific Research Papers
http://www.lgmd2ifund.org/resources/for-scientists/relevant-scientific-papers
Treat-NMD
http://www.treat-nmd.eu/
MDA's Research and Health Magazine-QUEST
http://quest.mda.org/
Cure Cogenital Muscular Dystrophy
http://curecmd.org/
Understanding Genetic Conditions
http://ghr.nlm.nih.gov/condition/limb-girdle-muscular-dystrophy
The Campbell Lab in Iowa
http://www.physiology.uiowa.edu/campbell/index.htm
Please join our LGMD2i Facebook group
www.facebook.com/groups/LGMD2i/
It is essential that we have everyone with an FKRP mutation register so we can identify patients when clinical trials become available
http://www.fkrp-registry.org
Clinical Trial for those with LGMD2i
https://clinicaltrials.gov/ct2/show/NCT02841267?term=lgmd2i&rank=1
Clinical Trial Readiness for the Dystroglycanopathies
http://www.clinicaltrials.gov/ct2/show/NCT00313677?term=lgmd2i&rank=1
We have a foundation raising money for a cure, please visit the CURE LGMD2i Foundation
http://curelgmd2i.com
There is a very informative FB group that addresses breathing with muscular dystrophy, I encourage you to join:
https://www.facebook.com/groups/BreathewithMDSupportGroup/
German LGMD2i Facebook group
Jan Bahlmann founded this group as a way to exchange experiences with other affected people in Germany. To join you need an active Facebook account and are requested to contact Mr. Bahlmann directly via private message.
https://facebook.com/jan.bahlmann (available after login)
Limb Girdle Muscular Dystrophy 2i Research Fund
http://www.lgmd2ifund.org/
Relevant Scientific Research Papers
http://www.lgmd2ifund.org/resources/for-scientists/relevant-scientific-papers
Treat-NMD
http://www.treat-nmd.eu/
MDA's Research and Health Magazine-QUEST
http://quest.mda.org/
Cure Cogenital Muscular Dystrophy
http://curecmd.org/
Understanding Genetic Conditions
http://ghr.nlm.nih.gov/condition/limb-girdle-muscular-dystrophy
The Campbell Lab in Iowa
http://www.physiology.uiowa.edu/campbell/index.htm